Please let everyone know that we (the family) appreciate all the comments in the guestbook, it's nice. And the prayers too, we know God can move for her and this is what we need right now. Who ever visits the web site, just let them know that we appreciate them helping to make this prayer chain bigger and getting the word out.
A note from Megan's Mom - I'm amazed at all the people who are signing the guest book, Megan is checking a couple times a day and she said it's really encouraging to them. Just knowing the concern and prayers that are being said for Kara's benefit is uplifting. I'm sure we have the good Lord's attention!
All of updates have been provided by Megan's mother, Mary Isaacs.
31 October 2007 10:06pm EST
All is good today! They are happy to be home and we are definitely very happy
to have them home! They made a trip to the pediatrics center to get a culture
for another VRE test. They will send it off to be tested and then send the
results to St Jude. We are still looking for that 3rd negative. Maybe this
will be it. Carson got a positive on his last test, so he is going to be in
isolation for another 3 weeks. This is so frustrating for the kids and their
families. Thank you for remembering these St Jude kids in your prayers. We
all went to church tonight, we had a good service, and it was good to all be
there together, all but Mike, he has a sore throat so he's keeping his
distance from the girls. We're all getting or have gotten our flu shots
except Mike, he'll have to wait till he feels better. This is hard for him,
he wants to hold and cuddle and play with the girls, but we can't take a
chance in giving them a bug. I'd like to share this poem. It's beautiful
and Carson's Mom, Debbie, put it on his site a couple weeks ago. I don't
think she'll mind if I shared it with you. It's
called "The Chosen Ones". God bless you all! HOPE.
The Chosen Ones
Not just any child could walk this uphill road.
These children walk it everyday, carrying a heavy load.
They show us heights of courage that we may never reach.
They show us what it is to fight a fight you cannot teach.
We stand beside them knowing there is no guarantee.
Except the One we started with to love them endlessly.
They are the special chosen ones, God knew it from the start.
He picked each child for cancer by measuring their heart.
The ones that measured biggest would someday face a test.
The challenge is to understand - God loves them more, not less.
He's using them to move our hearts closer to His own.
Teaching us to trust His plan and fear not the unknown.
For God can move a mountain and part the raging sea.
He wants our struggles offered up and given forth to Thee.
He smiles upon the chosen ones, before they're ever born and blesses them with courage to walk through any storm.
His love for them surpasses ours and cannot be denied, for in the dark of suffering His light will not subside.
No matter what the outcome, there is the greatest peace, in knowing deep inside their hearts, His love will never cease.
30 October 2007 8:36pm EST
Today was a better day. The photo shoot went real well and the girls
co-operated completely! Kara was getting tired but Megan said the pictures
are real good. Dr. Furman said the biopsy results showed cancer in the
morrow, but it's less than before. He is allowing them to come home for the
weekend and return on Sunday. He said they'll talk about there options on
Monday and he'll tell them what course of action he wants to take. It may be
chemo as an outpatient, unless a fever arises, or 3 days of inpatient chemo,
it sounds like they may be thinking seriously about a different mixture.
We'll know more on Monday. Pray, Pray, Pray, Please! I just talked to Megan
and they should be home around 11:00 pm. I'm taking Erica & Brent over to
their house and let them sleep on the couch so they'll be able to see them
when they get in. I better go, God bless you all!
29 October 2007 9:56pm EST
Well it's been a very exhausting day for the Lee's. Kara is finished with all
of her testing and a decision was made by Dr. Furman to postpone the
transplant at this time. This isn't what we expected to hear today, but we
do agree with his decision. It seems there is still too much cancer in her
body to warrant going ahead with the transplant. She still has some cancer in
her pelvis and upper legs. The extraction from the cartilage in her hips
today showed cancer. Dr. Furman was called in to get the morrow sample
because they tried a couple times and only got cartilage. He was able to get
a good sample, but we don't know what the results of it are yet. We're pretty
sure it'll still show cancer cells, since they were in the cartilage. Also,
her cancer bed (that's where the big tumor was), didn't show any cancer, but
it showed tissue, which he believes is dead tissue and some fluid. He is
going to talk to Dr. David Hoff, her surgeon, about going back in and removing
the tissue. When the time comes for radiation, they plan on doing it in the
cancer bed, and by removing the tissue, it may make the radiation more
effective. The biggest decision will be for them to decide what chemo
treatment to do on her. She is going to have at least two more rounds. The
question is whether to continue with the mixtures that they know are working,
and they know how her body reacts to, or to try another mixture that she
hasn't had before and see if it's more effective? We know the chemo mixtures
are destroying the cancer, she just needs more, and the disease was more
advanced than we realized. But remember, her body is responding to the
treatments!!!!! Dr. Furman wants to consult with other doctors before
deciding about the next course of treatment. This is our biggest concern now
and what Megan is requesting is that everybody pray about the doctors making
the right choice!!! We want the doctors to do what God wants them to do next.
He is in control and we are depending on His will being done. We thought the
battle was almost over, I guess it's just going to be a little longer now, but
our sweet little Kara is going to be all right, and she is definitely worth
the battle and she's a good little fighter, and the Good Lord will be
victorious when this battle is won!!!
Hope. (period) God bless you all!
26 October 2007 8:09pm EST
The Lee's are having a good time in Memphis today. Kara is playing with her
brother & sisters. They took Mamaw & Papaw Lee to see Mudd Island, and then
took a trip to the Mall to eat and ride the carousel. They went back to the
Grizzly and are playing there now. Yesterday her Neuroblastoma scan went
well, but they didn't remove her stitches like they said they would. They
have one more chance before transplant and that's Monday during the biopsy,
surely someone can remember to do it then...it takes alot for Megan to get
upset, but she was very close to it yesterday. After the biopsy Kara has an
appointment with the ear, nose & throat doctor, then they'll see Dr Furman and
get the results from all the testing, it sounds like it will be another long
day. Tuesday is set up for the photo shoot. They want to get a picture of
the girls painting, that's their favorite thing to do at St Jude, and then in
the afternoon they want to get some pictures of them outside. Megan & Tony
will need to sign some release papers on Tuesday also. Then Wednesday Kara
gets moved to the fourth floor, then the high dose chemo will begin. Please
pray all week in earnest that they all will be spared from getting any germs
and that God protects Kara from the mouth sores, fever and vomiting.
Not every story has a happy ending. Little Mackenzie McMahan passed into the
hands of Jesus peacefully this morning at 11:20am. They thank everyone for
every thought and every prayer! She touched many hearts what little time she
was here on this earth. God be with her family now and always.
25 October 2007 10:13pm EST
Lauren's culture was negative so she received a flu shot today. Kara has just
a very slight hearing loss, not enough to warrant hearing aides. It's the
highest 2 decibals that she doesn't hear. I probably can't hear them either.
She was told today that the sisplatin chemo drug is the one that's so hard on
the hearing, and Kara is done with that one. So the platin based drug she
gets during transplant won't be as hard on her ears. We don't expect her
hearing to get any worse. Praise God! The transplant doctor was very
informative. She said Lauren and Kara are identical inside, so when the bone
morrow is inserted into Kara it will go directly home (Kara's bone), instead
of finding it's way through the blood stream. It make a few hours for the
infusion since it's coming from Lauren, vs. her own stem cells being infused,
which can take around 15 minutes. She discussed the medicines, and nutrients
that will be given to Kara and the possible side effects, where the pain will
be from, the risks and the precautions that Kara will be facing soon. We'll
inform you of all these if and when they happen to Kara. With God's wonderful
protection, and all your prayers, it may not be so bad for our little Kara.
Dr Furman hasn't gotten all the testing done, he said there is no reason not
to proceed with the transplant and what results he has, they don't show
anything out of the ordinary. Tomorrow is the scan on her neurblastoma. They
have requested that the stitches that are imbedded around Kara's direct line
be removed while she's sedated. They should be done by early afternoon. When
they meet with the doctor Monday, they should have the results of everything.
The bone morrow biopsy is Monday too. God bless everyone. Have a good night
sleep.
24 October 2007 9:40pm EST
Another busy day for the Lee's in Memphis. Kara had a CT scan of her face
and neck, an EKG, and a Pet scan. It was a long day, but all went well. Kara
was only sedated for the Pet scan, for the other scan she was able to be real
still. Kara has had 2 negatives now on her VRE, one more to go! They took
another culture this morning and we'll know on Monday the results. They were
at the mall when I talked to them tonight and the girls were releasing some
energy. Tomorrow will be lab work, a hearing test, and they're to meet with
the transplant doctor for the first time. They were told to save all their
questions for this doctor, She's the expert. I pray she's a Christian, and
will be led by our Lord through these next few weeks.
Please pray for little McKenzie, she's struggling and the cancer is in the
bones now. It's spreading so fast. Her Mother is really needing prayer too.
I can't imagine how she's feeling, but the Lord can ease her pain and give
her the strength she needs. Brooklyn with leukemia, at Bro. Johnny Gabbard's
church in Bond, Ky. needs our prayers too.
Thank you all for the encouraging words, the cards and gifts, and mostly the
prayers. Thank the good Lord for his amazing grace! We love hearing from
you all. God Bless you!
23 October 2007 9:36pm EST
Some good news from Memphis today! Kara's magnesium has doubled, praise
God!! Her counts are going up, but her phosphates are still low. No problem
God can't take care of. She's still going to have her IV through the night
though and take phosphate orally. They wanted to give Lauren a flu shot
today, but when they checked her out, her throat was red, so they swabbed it
and we'll know tomorrow if it's anything to be concerned about, if not, she
can have a flu shot tomorrow. They want us all to have flu shots if we're
going to be around Kara. They met with a co-coordinator on the transplant
floor. She knew that Kara was getting a donor, but wasn't aware that it was
a perfect match until she told them of all the things to be concerned about,
and it really brought their spirits down. Then she finally realized Lauren
was a PERFECT match, she said to forget everything that she just told them.
Normally a person would loose all their immunity and have to be in isolation
for a year after transplant if a donor is used, but this is different, it's
being treated just as if they were using Kara's own cells, a perfect match
only cancer free. NO immunity problems, NO rejection problems. Megan said
it's as if God gave Lauren to Kara just to heal her from this cancer. I'm
still amazed at how this plan is working out. God is Amazing!!! Wednesday
Kara is going to have her Pet Scan. I'm not sure when the results will be,
but it'll be soon. Monday is her bone morrow biopsy to see if there are any
cancer cells left in her bone morrow. Please pray that these tests will show
NED. If anyone has been checking on Cole Kasper you'll see he is out of
St Jude and in the Grizzly House. He was only on the 4th floor for 21 days.
That's amazing too. He's doing very real well after his transplant. I've
been watching his recovery since he has the same type of cancer and stage 4,
he's also 3 years old. He is on a protocol (a new trial), and his treatments
are different than Kara's, and all the kids on this protocol are doing well.
Thank God for this! Also, good news about St Jude's, they have made a
discovery that mature cells can be divided. This opens up more research on
how it can help children with brain tumors. This is exciting! God bless
everyone! Thank you for your prayers!!!
22 October 2007 9:00pm EST
It's been a busy day for the Lee's in Memphis today. Megan was with Kara and
Tony was with Lauren. Lauren was checked out to make sure she is real
healthy for being a donor. The great news is the doctor said her blood work
was real good and Lauren was the first donor that he had ever tested that
passed all the testing on the first go round!!!. She's a very healthy little
girl, Praise God for this. He really has a hand in all of this, I have no
doubt. They need to try and keep her from getting any colds or virus' now.
She doesn't have another appointment until 11-8-07, the day before transplant
day. Kara is still having trouble with her magnesium, it was critically low
again today. They started her back on the IV 24 hrs a day, and upped the
magnesium in the liquids. She won't need to take any orally, but she does
take potassium orally. They said this is a side effect of the chemo mixture
with sisplatin in it. They said apricots are high in magnesium and bananas
high in potassium. She eats bananas, but I don't think she's ever had an
apricot. Good news is her chest X-ray was clear, she's had a cough and they
wanted to make sure it wasn't from a chest cold. Her culture from her nose
was negative for any virus also, and she's got her first negative on her VRE
culture, (2 more & out of isolation). They gave her platelet's last night
and then did a blood draw today. They gave her a pokie this time to see if
the blood clots like it should, and it did, and she cried.........Tomorrow is
more blood work to check her magnesium levels, and 2 other appointments. Wednesday
she will be sedated for a Pet Scan. Pray this doesn't show any tumors.
Tumors absorb sugar, so any place that sugar is collected will glow in this
scan. I really don't think anything will glow, I feel real good about her
treatments and God's healing that's taking place. Her bone morrow biopsy will
be delayed until 10-29-07, they want her to recover as much as possible
before they do it. Megan said she think it's going to show NED, no evidence
of disease!!! This is what we're expecting! Praise God! Have a great night
and God bless.
20 October 2007 3:57pm EST
Hi, we are doing well today. Last night it was a blessing to hear Kara and
Lauren play like they use to. They gave Kara blood earlier in the day and I
think it has sure helped her feel better. Today we got a visit from Bro. &
Sis Parsley, they brought goodies for the girls and they have played with the
new toys and laughed like old times again. We need to keep Kara away from
crowds and other people this weekend since her counts are pretty low. We've
noticed some unexplained bruising also, so they'll probably give her some
platelets when they go to their appointment tomorrow. It's a beautiful
day!!! We've been outside going for a walk, showing the Parsley's the St
Jude grounds. They left and it was sure nice to see them, we miss our
church family........We're waiting on Tony & Mike to get here. Please
pray for Kara's grandpa Butch, he's trying to pass a kidney stone! This is
his first and hopefully last. Pray that Kara doesn't run any fever this
weekend, we don't want to end up at St Jude again. God bless everyone and
we're praying for you too.
19 October 2007 11:46pm EST
Sorry I haven't updated in a couple days. We have been busy with appointments
and last night I was writing an update and I was bumped off the internet and
couldn't get back on. Kara's counts have been OK this week, we do expect her
blood was getting low so they will probably give her blood today. Megan and
Kara are over there now getting blood work done. Lauren and I are here at
Grizzly cleaning and doing laundry. Kara has been on oral magnesium, since
it's been critically low. They are also putting it in her IV along with
extra sodium phosphate, and potassium. Hopefully they will be at good levels
this morning and she can have the IV removed. Her counts should be coming
down now and be low all weekend. Erica has strep so the kids won't be coming
this weekend. The doctor said it's important we keep the twins healthy.
Even if Lauren gets a cold, they won't sedate her, and this will delay the
transplant. Lauren's appointments went well. She had blood work done,
(and she didn't even cry, Yeah Lauren!!!) and chest x rays and had a short
visit with the child life representative. They are concerned that Lauren
will think it's up to her whether Kara gets well. We are to emphasize that
it's a team effort that will make Kara well. This way she won't blame
herself for anything that may occur, she may even think the side effects
from the high dose chemo are her fault. So we're working on this with her.
Kara hasn't cried the last 3 days when we gave her the G shot. Yeah Kara too!!!
She even wanted Mamaw Mary to give her the pokie this morning......Megan has
met with a writer for St Jude, She was interested in hearing "her story".
She said it will be published and she let her and Tony look it over before
hand. She's wants to talk to Tony and Dr Furman next. She also wants to do
a photo shoot of the twins next week. It's going to be hard to fit it in
the schedule, next week is really busy too. The article will be in the
Promise magazine here at St Jude and also on their internet site. We'll let
you know when to look for it. We've been fitting in some fun this week too.
We rode the carousel 5 times the other night. Got their favorite sugar
cookies at the mall, rode the carriage ride downtown Memphis and had a picnic
on Mudd Island. Today when they get done we're going to buy them a new
dress for the photo shoot. Well, pray for the family, that they won't get
any sicker. Praise God for helping us here. Please pray for Kara's
irritability...her wacky chemicals have made her very cross and demanding.
Needless to say it's been a long....week! I remember those days, I think
I have more patience now though, thank God for that!!! God bless you all!
16 October 2007 6:07pm EST
We had a good weekend. We all went to Mudd Island, out to eat and drove by
Elvis' house. Everyone always asks if I've seen his house, now I can say
'Yes'. I've got a picture from inside the gate to prove it. We didn't take
the tour though...you all can do that and tell me about it! Kara is very
run down since she's been out of the hospital. Her counts are still good,
but she's very tired and doesn't have much appetite. They say it's normal
for sisplatin, (her chemo this time.) The doctor said it really takes a lot
out of her and it'll take a few days for her counts to start to drop, and for
her to regain some strength. We went to Cracker Barrel last evening after
spending 5 hours at the hospital, (waiting on blood test results, the doctor,
and for more IV fluids), she felt very bad while we were there so we had to
put some of our food in a box and leave. She started to feel much better
later last night and today she's feeling pretty good, she just tires out
easy, but at least she is playing. She had an appointment again this
morning and they gave her more fluids, they may take her off of them
tomorrow, we'll see. No fever, thank God for that. Her temperature
started to go up last night, but it came back down on it's own. When the
doctor saw her yesterday he thought that we might end up back at St Jude
this weekend, but she's a lot better today, so hopefully when her counts start
to drop she'll still be fine. Lauren has her 1st appointment tomorrow.
We'll probably be there most of the day, but I'll send an update tomorrow
evening. Lauren was funny yesterday, actually she's funny everyday, but she's
had a cold and been tired. She told me she was just too tired to help Kara
and someone else was going to have to help her. She does help her by being
here, more than she'll ever know. Thank you for all the cards, wonderful
gifts and much needed prayers, we're going to be OK soon. God bless you all.
11 October 2007 5:12pm EST
Kara isn't feeling too good today, she isn't eating very well either, but the
meds are keeping the nausea under control. One more day of chemo and she'll
be done. St Jude is making plans for the transplant. Lauren has a patient
number now and she's officially a patient and in the computers. She has an
appointment on the 17th and the 22nd. These are for getting her prepared for
the transplant. They are going to be very busy starting the 22nd.
Transplant time will be here before we know it. The plan is to have all the
testing done and the results back and admit Kara to the 4th floor on November
the first. Seven days of high dose chemo, one day of rest and then the ninth
day the transplant. These plans are tentative. They're checking to see
if the operating room will be available on first of November. Right now we
need to pray that this chemo is destroying more cancer and Kara recovers
without any problems and we all stay healthy for a couple of months. I still
believe that God is working out His plan through Kara and He will be
victorious when she is healed. Thank the good Lord for all His comfort and
care!
10 October 2007 2:55pm EST
Kara has an upset stomach today. She has eaten good today, but it all came
back up after they gave her meds for gas, she hates to take it. She's
taking 3 different meds for nausea hopefully this will keep it under
control. She was sleeping when Megan called. Megan's taking Lauren with
her to Wal-Mart and hopefully Tony can get a nap while Kara is napping.
Please pray that they all have a good night and get plenty of rest. The
family of Mackenzie McMahan really needs prayer. She's the 3 month old
baby who has had treatment at Vanderbilt. They were pleased with the
radiation treatments so last week they transferred her back to Children's
in Knoxville. She started having seizures and after some testing, they
found several tumors on her brain. There's not much else they can do for
her now. She has really touched a lot of hearts in her short time here.
It has brought her family closer, and they are asking for prayer to give
them strength to face the times ahead. Please pray in earnest that God
will help them come up with a cure for this awful disease.
09 October 2007 9:00pm EST
Megan says the day has gone pretty well. They have a bigger hospital room
this time, which makes it easier for them. Kara has had her chemo for
today and is still eating good and feeling pretty good. They had just
ordered her a personal pan pizza from Pizza Hut. She's changed from
cottage cheese & pancake craving to personal pan pizzas. Tony & Lauren
don't feel too well though. They'll probably eat and go on to bed. It
looks as though they have colds, they're taking medication and it's
helping. Pray they can keep from giving the bug to Kara and that they feel
better soon. Thank God for another blessed day. Thank you for checking
in and praying.
08 October 2007 1:03pm EST
Kara returned to St Jude yesterday. Tony, Megan & the twins are in a
different room @ the Grizzly House, her address is:
St. Jude Children's Research Hospital
Grizzly House
Attn Kara Lee / Room 1002
332 N. Lauderdale
Memphis, TN 38105
All her blood work is good this morning. They've been waiting an hour to
see their doctor. She'll be admitted today and will start her chemo just as
soon as they give her the premeds and some IV fluids. This takes a few hours,
so the actual chemo probably won't start until tonight. She has gained 2
lbs in the last 5 days. Isn't this great? Kara's culture was positive for
the VRE, so she'll have to wait for 3 neg's before she can be out of isolation
again. This is what kept happening to Carson Higgins. I think he's still in
isolation, he was last week anyway. The transplant nurse came in to talk to
them today. She said they are scheduling testing for Kara the 24th, 25th &
26th, and then the next week also. Lauren will be tested the second week
too. If all is ok they will move Kara to the 4th floor and start the high
dose chemo. They will decide if she'll have 8 or 10 days of this. They
count down the high chemo days from say 8, or 10 to zero. The morning of
day "zero" they will remove Lauren's cells and transplant them right into
Kara. Hopefully at this time Kara's bone morrow should be completly destroyed
from the chemo. She will get very sick very quickly. This is the most
dangerous time for her. They'll have to keep her as comfortable as they can
and wait for her body to ingraft the stem cells. This sometimes can take
a few weeks. We expect Kara to recover quickly since she'll be getting
Lauren's healthy cells, and they will be identical to her own. This past
round of chemo she did run a fever, but she didn't vomit at all, and she
didn't get any mouth sores, and was even able to come home for a few days.
God can protect her from the pain and side effects at transplant time. He
has helped her so much up to this time that I'm sure He'll continue until
her healing is complete. We've are so thankful to God for taking such good
care of Kara. Say a prayer for Tony, he's aching all over like he's getting
a bug, and Lauren is sneezing and has a ruuny nose. We sure don't want
anybody to be sick around Kara. I made amistake by saying it's been 3
months since we found out about Kara's cancer, it's been 4 months....it seems
like it's been a year. God bless!
05 October 2007 10:30pm EST
Kara is doing really great. She is having fun being at home and playing with
her toys and being with family. It was 3 months ago today that we found out
about her cancer. She's made a lot of progress in this time. We've been told
that these 6 rounds of chemo are to get her body ready for the high dose chemo
that's given just before transplant day. I hope her appetite stays good and
she can gain some more weight back before then.
Tomorrow we are having a cookout to celebrate many blessings.
1. Having Kara home with us
2. Cousin's Justin & Austin's recovery from the wreck
3. Papw Mike turning "58"
4. Papaw Butch turning "56"
We've sure got a lot to be thankful for. Hope you all have a blessed
weekend!
04 October 2007 2:03pm EST
Tony's nephew's are home now and they are very sore, but thank God they're
going to recover and be fine. They are very fortunate boys.
I didn't update yesterday since we were running back and forth from the
Grizzly and St Jude's, and then by 3:30 pm we were on the road to Dandridge.
Halleluiah!!! Kara was finally released to come home, she is to be back on
Sunday. They want to start her next round of chemo Monday. Her platelet's
are a little low, so our instructions are to watch for unexplained bruising,
nose bleeds, and if her gums bleed. If this happens we are to take her to
her pediatrician and have her blood checked. We got in around 12:30am and
there was a big surprise in the living room for Kara. Some very generous
and caring gentleman called and gave special instructions for someone to
pick up a battery operated Barbie car and please have it there for Kara when
she got home. Instead of a Barbie car, it was the new big purple Princess
car. It's made after the new Pontiac coupe. It even has a radio in it.
The battery was all charged for them, they took off and ran right into a
wall. I think they're going to need driving instructions for this one,
it's more powerful than their truck! They were so excited. I wish this man
could've seen them, it would have been a real blessing to him. They've
received so many gifts and cards that we just couldn't begin to list
everyone. Kara can be having a rough day and then she'll get a card or a
gift and it really makes the day better for her. We are so thankful for
these, and the prayers. Kara has touched so many hearts, it's such a
blessing to know that there are so many of God's good people in this world
and they are so willing to show the love of God that's in their hearts.
Kara is going to have a wonderful testimony for God!!! God Bless.
02 October 2007 10:43pm EST
First of all, we have a very urgent prayer request. We got a call early this
morning and Tony's 2 nephews (Austin & Justin Lee) were in a bad wreck this
morning on their way to school. Justin could get out on his own, but Austin
had to be cut out of the truck. They took Austin via Lifeline to UT hospital,
and took Justin by ambulance. Justin has a concussion and he's on crutches, his
legs hurt him real bad, but everything else seems ok. Austin broke his collar
bone, a rib, and the upper part of one lung collasped. He's in a back and neck
brace, and this evening he's started throwing up. They didn't think anything
else was wrong with hin, but the Dr is going to check him out closer tonight.
Justin may be released tonight, but Austin will have to stay. Please pray
for these boys and their families.
For Kara, it's been a pretty good day again, thank God for Kara's continued
improvement. We were dismissed this afternoon to the Grizzly House. We went
to McDonald's and Kara almost ate her whole cheeseburger. Then to Grizzly for
a short nap. Gus's Chicken catered dinner for all of us here at the Grizzly,
Kara can't eat with the rest of the kids, so they brought it to our room for
us. This is really nice, some of the business' and churches do this now
and then, and it's really appreciated by all. Then we took a walk around
the St Jude grounds, the weather was so nice we hated to be inside. Then
we decided to drive over to Mud Island. Now I know why they like to go
there, it's sooo nice. You doesn't even feel like you're in Memphis, it's
like it's own little town. It kind of reminds me of Charlestown, but the
houses aren't quite as grand, but they're close together and along the river.
Being near the water always seems to help people wind down and relax, so this
is going to become a regular place for us to go. Kara & Lauren just ran
and played and danced in the grass. It was good to see them happy again.
We were supposed to go to the clinic on Thursday to check Kara's blood and see
if we could stop the G shots, but Tony called and tried to have Kara's
appointment moved up to tomorrow. We are hoping they'll let us come home for
a few days before the next round of chemo, if her counts are good. I'm sure
they are, you can tell by the way she's acting and eating that things are
going upward!!!! We can't get all their stuff in my little car so Tony wants
to drive here tomorrow and help us get everything home. Tony is anxious to
have them all home again! Thank you for your prayers and keep praying on.......HOPE.
01 October 2007 10:17pm EST
A GOOD DAY! Counts are on the way up, no fever today, she's on the right
track for discharge. We're hoping Tuesday, probably more like Wednesday though.
She was up at 5:45am today ready to eat Fruit Loops & now she's in a great
mood. It might have something to do with her 4 hour nap this evening. She's
eating good today too. The fever's been on a downward trend so they believe
that she's had something viral instead of bacterial. GOOD!!! They like to
have you to call at St Jude with in an hour when they're counts are low
(normal is 5K to 10K) and they get a fever. They immediately start them on
antibiotics and then admit them. If it's something bacterial they want to
be on top of it. Kara's had an overall good day today. Please pray that
all the cancer is being wiped out of her body. God is able to make this
happen. He's helped her so far. Her 6th & final round of Regular chemo
is next week--then she'll be re-evaluated, then on to high dose chemo and
transplant. Please continue to pray for Cole Kasper who's in transplant
now, also Carson Higgins, he's a brave little fighter and he's been fighting
off this VRE & C-Diff too. They were hoping to get to go home for the
weekend, he's hoping his counts are going up. It does the whole family so
much good to be able to go back to Home Sweet Home now and then!!! God Bless.
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