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Kara Lee

Please let everyone know that we (the family) appreciate all the comments in the guestbook, it's nice. And the prayers too, we know God can move for her and this is what we need right now. Who ever visits the web site, just let them know that we appreciate them helping to make this prayer chain bigger and getting the word out.

A note from Megan's Mom - I'm amazed at all the people who are signing the guest book, Megan is checking a couple times a day and she said it's really encouraging to them. Just knowing the concern and prayers that are being said for Kara's benefit is uplifting. I'm sure we have the good Lord's attention!


All of updates are provided by either Megan Lee or her mother, Mary Isaacs.

28 May 2008, 10:23pm EST
Just a quick update while everyone is still sleeping in & it's quiet. :) I forgot to mention that with Kara's raise in counts she was able to stop her post -transplant medicines, and they even had her stop her continuous antibiotic for one week. She developed a rash, and they're not sure of the cause. They did a culture to test for a couple of things. One possibility is being out in the sun with her Septra. (This medicine has 2 antibiotics combined.) We haven't heard anything on the results. Hoping that's good news and nothing is growing on the cultures. Her rash is looking better. The Dr. said stopping Septra for 1 week won't hurt her. We also found out she got another POSITIVE culture for VRE, meaning we are in isolation again for at least another 3 weeks!

We're planning on going to church 2-nite. It's been a long time since we've been! I'll post something she said yesterday that we thought was cute, and I'll close for now.
Yesterday, she was talking to Papaw Mike about teeth. Dad was telling her they have tools they use to fix them. She told him they used a spoon & fork to fix hers! All I can figure out is that she's talking about the little silver mirror & pick! :)

Hope everyone has a great day - God Bless!
Megan


27 May 2008, 10:35pm EST
I'm overdue on an update - so here we go!

Kara is doing great - last Thursday's bloodwork showed her ANC at 1600! It had doubled since last Monday's count of 800. Friday's check showed a drop down to 1300, but we are VERY happy to see her white blood cells finally raising up closer to normal! (The drop was probably just fluctuation.) PRAISE THE LORD! This is a relief in itself. It was frustrating for little while, but God has helped her again, and we are thankful! More good news - we are at "HOME SWEET HOME"! It's been busy, but we are so glad to get this break. Kara has said a couple times, "It's good to be home!" We are really enjoying being with all of our children together, especially since they're out of school for the summer. I am hoping that it won't be long until we're "home for good" as Kara calls it.

Kara had her radiation simulation, and they have her skin marked for radiation. Kara also had her MIBG scan. The actual scan was about an hour long, and we tried it without any sedation this time. Since she wasn't sedated, I was able to be in the room with her while the scan was taking place. I kept watching her pictures on the screen, but Dr. Furman said that we'll have the results when we return to Memphis. They plan on starting Kara's radiation on Monday, June 2nd. We are still hoping for awesome scan results.

Thanks for checking in, and please keep praying for her healing!

God Bless,
Megan


19 May 2008, 9:36pm EST
Kara only had labwork today, no chemistry check. Her white blood cells and hemoglobin dropped a tad, but her ANC stayed at 800, which isn't too low, but not real high either, and not normal. Her platelets did rise by 30,000! I just wish her immunity was normal! I know this takes time, I guess I was thinking once it started up, it would just climb and climb, and climb. Which it is climbing, it's just that I was hoping it would be quicker than this! Please pray for her bloodcounts, because radiation can also lower her counts, causing greater risk for infections.

Her weight did jump up almost 1 lb. in just a few days time. I was surprised! We have been going to Mud Island a lot, walking, and the girls have been playing around a lot, but evidently she's eating good enough that she's still gaining. I am always happy when she steps on those scales and there's a jump in weight!

She does have 1 negative culture for VRE (reason for isolation). They did another swab today, and we'll know probably next week the results. We need 2 more negatives to break out of our isolation room! She is still on her antibiotics and phosphate supplement.

Here is an updated schedule for this week's scans. We found out today that Kara WON"T have a bone marrow biopsy before her radiation starts. Her Dr. felt like we shouldn't put her through the biopsy. He would like to know about her disease status as much as us, but we will do it again, just at a later date. He said the MIBG scan will tell us about her disease. The biopsy would tell us about her bone marrow. Either way, whether we had a biopsy or not, she would still be getting radiation, so: PLEASE KEEP PRAYING!

    Wednesday: CT/MRI Simulation for Radiation
    Thursday: Nuclear Medicine Injection (Glow Medicine)
    Friday: MIBG SCAN

One thing we're not sure of, is WHEN we will be getting the results of Kara's MIBG scan. Her MIBG scan won't be until 2 in the afternoon on Friday, and they have her in sedation recovery until 4-5 p.m. that evening. With Monday being a holiday, I doubt clinic will be open. PLEASE KEEP PRAYING FOR KARA'S CANCER TO BE GONE !!!

Thank you for your prayers.....
Megan


17 May 2008, 2:02pm EST
We met with the Radiologist yesterday. We went over the short & long term side effects / risks, and signed the consent form for radiation to begin. Next step, they will check her blood count levels on Monday. On Wednesday, Kara will be sedated for a CT & MRI for Radiation. This will help them figure out the exact spots that they will need to mark her skin for when radiation begins. Thursday is her MIBG scan (Neuroblastoma will glow on this scan). As of this a.m., her Bone Marrow Biopsy wasn't in the schedule. Please keep Kara in your prayers. We really need to see awesome results! Well, I just wanted to let you all know what was going on....please keep praying !!!!!!

Have a great weekend......
Megan :)


15 May 2008, 10:28pm EST
Wednesday: The girls had been wanting to go to Mud Island to ride the monorail for a couple of days, so with no Dr. Appts. scheduled, we took advantage it. It's a short ride overlooking the Mississippi River. There's an outlook area on the other side. On our way back, we decided to walk instead of ride. Above the monorail is probably a 12-ft. across walkway with metal rails on each side. We were able to see quite a few catfish in the river from where we were at. The girls had a good time. We were there not long before closing time, so we missed a lot of the crowd. We were the only ones on the monorail, and instructed the girls "Don't touch!" Call us germaphobics, I know! :) I have to share this: We arrived right after 2 elderly couples got there. When we were all at the ticket gate one of the lady's asked us if we were from TN. I said,"Yes, East TN, but we're here because of St. Jude. She said her grandaug hter went through that treatment (chemo, I'm assuming since Kara's still bald), and told us she had Neuroblastoma. I asked if she said "Neuro". She said, "Yes, and she's 15 going on 16. " She also said she was 3 at the time of diagnosis. I said that is what Kara has, and she was 3 at diagnosis, and now she's 4, and just had her transplant where Lauren was her donor. I told her it was encouraging to hear that about her grandaughter, and she patted my arm, and said Kara would be fine.

Kara & Lauren were laughing and being so loud in the car afterwards that we were trying to get them to "keep it down!" Kara didn't seem to be acting as irritable as in the past when her counts are low, so this had me & Tony wondering if maybe her ANC was doing better. They have had special prayer for Kara at church, too, and the Lord really came by! By the way, if anyone's up to it, our church is in revival (Blue Springs) and I know they'd all love for you to come! You're all welcome! :)

Thursday: Well, we were welcomed back into D Clinic today, and we can HAPPILY report that Kara's ANC was 800. The last time or two it had been checked it was around 400. So, this to us, was a really good sign! She wasn't given an artificial GCSF boost either! Her platelets, and hemoglobin also rose again on their own: (70,000 / 10.1) PRAISE THE LORD !! He does answer prayer! Never give up!!
We don't have any dates for Kara's scans/biopsy at this time. Dr. Furman was unable to get in contact with the Radiologist before talking with us, and they need to talk first. There's no sense in Dr. Furman scheduling the same tests that the Radiation Dr. will need. Next step is talking with the Radiation Dr. tomorrow, and hopefully we will have a better idea when the scans will be. I can't promise that they will be in the schedule for sure by tomorrow, though! We are hoping when it's that time, we will gett awesome results, because frankly, Kara's last scan showed more areas of cancer than they would be radiating. We have to keep trusting God, no matter what!

The Nutritionist stopped by Clinic today to tell us that the main factor for her, is if Kara will be sedated for Radiation or not. I think most Kara's age are sedated. We want her to be able to be still during the process - for accuracy! If she is sedated, she will not be able to eat before her radiation appt. So, by the time it's over, and she feels like eating, she may or may not have an adequate amount of hours in a day to consume the calories she'll need. A couple options she has are i.v. fluids, or back on the TPN. She did say Kara is doing good. She comparable with Lauren. She has grown, and her weight is staying stable. (She's actually a bit heavier than what they have recorded for her base-line weight at the start of transplant.) I told her that I was concerned with her growth during the normal courses of chemo before transplant. She said it's like a double-edged sword, the chemo drugs can stunt growth, and if you're calorie intake isn't enough, then you won't grow. Hopefully, after she heals completely, and is eating more regular she'll catch up with Sis. She was pleased with how she's doing.

Kara really is doing good - Dr. Furman said she looked good, too. He mentioned how sick she got during transplant, and said that hopefully her cancer got as sick as she did. I was thinking the other day how it had only been somewhere around 2 weeks since she was discharged from the transplant floor, and how good Kara was doing! She doesn't have to go for weekly therapy visits anymore, she has been walking/riding her scooter. The other night, we figured it out, and we walked a little over a mile at Mud Island. Kara was walking and running and on her scooter,too! Of course, she had times when she was being pulled on it, or Tony was piggy-backing her, but she really got her exercise in! She looks real good. Her eating slowed down for a couple of days, but she's right back in a good eating mode again. We are really thankful for how God's helping her along.

Please keep praying for Kara and all the ones affected by cancer. Please keep remembering Danny Parsley & Brooklyn Durham! We also wanted to add Judy Lee, our sister-in-law, too. We appreciate you remembering them!

Thanks for checking in... Have a great Friday!! :) :) :) :) :) :) :) :) :) :) :) :) :) :) :)

God Bless,
Megan


13 May 2008, 6:25pm EST
Well, Kara "graduated" from P.T. today! (Thank you, sweet Lori !) She will have a follow-up visit way on down the road to see how she's doing, but this was it today. We need to keep Kara working on balancing on one foot, and jumping. But, this should be an easy task with a pre-schooler!

When we were leaving the Grizzly House today, we ran into some friends of ours, Amy & Rachel who were our neighbors at Ronald McDonald House. It was good to see a familiar face, and find out Rachel's on the "down-hill" side to her 2 year Leukemia treatment. When we were leaving the Hospital, Tony ran into Russell & Ann who we also had some great laughs with at the RMH, and he looked good, had gained weight, and was here just for a check-up. Then, the girls & I ran into Miss Cheryl, who was Kara's in-patient nursing assistant on the 2nd floor, who we bonded with over several months of Kara's therapy. Kara was blowing Cheryl kisses from the car, and Cheryl was hollering to Kara that she loved her & was blowing Kara kisses back to her. It was so good & was really uplifting to see people we hadn't seen in a while, under good circumstances. I was thinking that not too much longer, we'll probably be gone, & back home - which don't get me wrong, is GREAT! WE NEED TO BE HOME. But, in a way it's sad to know that we won't be running into these people as often, and some of the people here you really get acquainted with. After you're here for so long, you share living quarters, you have a common bond, the Hospital, the cancer, etc. So, I guess you could say there's mixed feelings that we will face when it comes time to leave. This is our "safety net", and people here are really special. But, hopefully we'll be leaving under good circumstances, and what a reunion we'll get to have to all be back home together! Please keep praying that Kara has awesome scan & bone marrow biopsy results. We know God is in control, and MORE THAN ABLE to remove Kara's cancer. All He has to do is speak it, and it will be. He has never left us, and continues to help & bless. We are thankful for His daily blessings!

Please remember all the ones out there battling illnesses!

God Bless,
Megan :)

P. S. - Thank You, Jennifer, for the delicious meal!


12 May 2008, 7:31pm EST
Kara's ANC results were not a surprise to me today, at only 400. :( I am so ready for her white blood cells/neutrophils to just take off & flourish. I know it's a good sign that her platelets & red blood cells are coming in on their own. It just makes me wonder why her immunity cells aren't taking off, since they all come from the same place ?! Her platelets are up to 50,000, which is high enough for a surgery, so this is good to see, and her hemoglobin rose also. This is great to see. Please pray that her immunity really boosts on it's own. She did get another artificial boost with GCSF. She will continue her preventative antibiotics. Usually, at 30 days post-transplant you are able to stop these med's, but since Kara's ANC was low, they want her to continue taking these. If we have any problems (which we don't anticipate!) we will visit transplant clinic through Wednesday. If no problems, then Kara won't be seen at the Hospital until Thursday in her NORMAL ONCOLOGY CLINIC - YAY! They told us today that by then, they should have her tests scheduled. Her chemistry was good. One of her liver enzymes was slightly elevated (just like last week), but this isn't a worry to them. If they were worried they would just take her off of one of her medicine's. Kara is scheduled for Phys. Therapy at 3pm tomorrow, and I think this should be it in that department, and then she'll be seen on Thursday for labs, Nurse Practitioner visit, and clinic. ! :)

Since it was beautiful outside, we headed back over to Mud Island for a walk. Kara took her scooter, and she & Lauren enjoyed riding & being pulled on it. Tony & I sat on a bench and soaked up some sun (& heat!), while the girls played in the shade under a small tree. They were playing in the mulch & dirt for a little while. It is so nice there, and a great place just to go and relax, and enjoy the outdoors for a while. Afterwards, we took the girls to Sonic for a slush, and then took a drive, and headed back to the Grizzly House. The girls are worn out, and are re-energizing with an afternoon nap.

Overall, today's been a good day. Please pray for Kara's immunity to fully rebound and recover on it's own! I really want to see it go back to normal real quick! I wish I had a definite reason why her immunity cells are lagging behind the rest.

Please also remember Brooklyn Durham, who is being admitted to U.K. Hospital. Thank you for your prayers, messages, and checking in on Kara.

God Bless,
Megan :)


11 May 2008, 9:17pm EST
I know this is a late wish, but: HAPPY MOTHER'S DAY !!!! Hopefully everyone out there had a wonderful & special Mother's Day!

Kara's doing good. She has been a little irritable at times today, making me wonder if her ANC is down. Overall, she seems to be doing good. We will have a Transplant Clinic visit again tomorrow, and find out what her blood counts are. I don't have a lot to report today. We did get out for a little while, but now we're back at the Grizzly House. I will update more tomorrow, after clinic.

Please continue praying for awesome scan & bone marrow biopsy results!

James 5:16: .......The effectual, fervent prayer of a righteous man availeth much.

God bless,
Megan :)


10 May 2008, 2:17pm EST
Hello! Kara's labs yesterday showed that her ANC was 1300 (this was after the GCSF boost). We are waiting for the labcheck when her ANC rises on it's own. Hopefully this won't be long! We were told it might take 1-2 weeks for this to happen. It just doesn't make sense to us that after the Engraftment Syndrome, (when Lauren's cells were coming in so fast), and they treated her with steroids, that after she's off the streroids, her white blood cells and ANC (immunity) isn't just taking off real well on it's own. We keep getting told that it's a good sign that her platelets and hemoglobin are rising on their own. (Platelets are usually the last of the blood cells to recover.) They have seen this before, and sometimes cells are just slow to come in. We've also been told that blood counts can fluctuate before they level out. I guess we just need to wait a little bit longer and see what her body does. We're just anxious for this to happen real soon! Her red blood cells jumped up from 8.7 to 9.4 in 1 day's time. Her platelets dropped by 2000. But, this isn't anything to worry about, probably just fluctuation. She still didn't need any transfusions, and they aren't planning on giving her ANC an artificial boost. She will be seen again on Monday, in Transplant's care, then she will be transferred over to her normal Oncology Clinic with Dr. Furman. She will probably have her last Phys. Therapy visit on Monday, also. Her weight dropped between 3/4 -1 lb. This may have been fluid loss. Her appetite continues to be good, which we are thankful for!

Tony & I talked to Erica & Brent last night. Mamaw & Papaw Lee took the grandkids fishing yesterday. It was funny listening about the time they had. The only catches of the day were each other! Erica caught Brooklyn on the ear, Skylar hooked his self, and Austin caught the seat of Papaw Lee's pants! Erica thinks Brooklyn's worm may have hit her head, because she felt something wet. Brent said that Mamaw Lee told them they looked like Hillbilly Rednecks! :)

Well, I hope everyone has a wonderful Saturday!

God Bless,
Megan


08 May 2008, 4:13pm EST
May 8th, +31 Days Post Transplant

Well, all of Kara's vending machine trips, fast food, and snacking has paid off! Her favorite items right now are a bag of peanuts and a 3 Musketeers bar! She has gained 1.4 lbs. just since Monday! :) There is a little over 4.5 lbs. difference now between her & Lauren. Her little belly was pooching out today when Dr. Kasow was taking a look at her. She really looks good :) The Nutritionist said she was happy, and they have stopped Kara's TPN.

Kara & Lauren both really enjoyed Phys. Therapy today. The Therapist said that today she was Kara's evaluation, and said she will only have 1 more therapy visit! We are really pleased with how she is doing! Her platelets and hemoglobin both rose again. They were: 8.7/43,000 One thing we were a little disappointed in, was her ANC was only 400. She was 700 on Monday before they gave her a boost of G-CSF. They gave her another boost today. We would like to see her ANC at least at 1000. She isn't needing any transfusions - just infusions to boost her immunity! The Dr. thought within 1-2 weeks her ANC should start to come up on it's own. That was our main concern when we talked to her today, and she said that they do see this with kids that have had a lot of treatment. Some kids' counts go up and down before they level out, and it's good that her platelets & hemoglobin are coming up on their own. She isn't needing any transfusions of blood products; just infusions to boost her immunity. She said the big question is when Dr. Furman (Solid Tumor Oncologist) will want to start her radiation. Radiation can also lower her counts. She said a good thing is that we have Lauren, if Kara needs a boost. She will be having another evaluation soon. This will include checking her bone marrow and the MIBG scan (that makes the Neuroblastoma glow.) PLEASE PRAY FOR AWESOME RESULTS !!!!! We know God is able!

She is still going to be seen by the Transplant Clinic, and probably be transferred to D Clinic next week. The Nurse Practitioner explained that they don't like to switch clinics going into the weekend, and since transplant's been seeing her, they'll keep her until next week. They discontinued her steroids (Kara says they taste like mafume, a.k.a. perfume), but added an oral supplement of phosphate. They still would like to keep her on her med's for a few more days. (Probably because her white blood cell counts were down, and a couple of her main med's were an antifungal and an antiviral medication. She will be seen again on Friday to check her labs, and make sure her boost of G-CSF did it's job! Please also pray her ANC really picks up and starts producing her immune cells like we need! Have a great Thursday!

Megan :)


07 May 2008, 8:44pm EST
1 Month Post Transplant! Whoo - Hoo!

Kara continues to do well. Yesterday, the girls and I stayed in our room here at the Grizzly House, until it was time to pick Tony up at the airport. The girls still get excited when they see the jets, and there's plenty of them here in Memphis. It was really nice outside so we headed over to Mud Island to walk around and get some fresh air. After a little while we left, grabbed something to eat, and headed back to the Grizzly House. Kara's appetite was awesome yesterday! The girls are really into the vending machine. Handy for them, it's right across the hallway from our room. I told Dina I'm liable to be as big as a barn by the time we leave here!

Today, we visited with Bro. Ingram & Bro. Lance for a little bit. They prayed for Kara, and gave us some delicious ribs before they headed back home. Thank you - they didn't last long! We ran a few errands afterwards, and we're back here at the Grizzly House. Kara hasn't ate as much today as yesterday, but she's still doing good. She's napping right now. I hope to have good news for tomorrow's labwork. She has a.m. appointments, so I'll update tomorrow night.


06 May 2008, 2:30am EST
Kara had her bloodwork done on Friday the 3rd, and she didn't need anything transfusion-wise! Praise the Lord! They released Kara from doctor visits (unless we saw any reason that we thought warranted a CBC - glad to report she didn't have to go to the hospital all weekend!) Her P. Therapy wasn't scheduled until later in the afternoon on Friday, and they said we could move the appt. up earlier, but with family so close to arriving, and with how she looked, they said they'd cancel her p.t. appt. for us! Yay! :)

The weekend was busy. There was a lot of back & forth, traveling here & there with both sides of our families. We were able to spend time with both sets of parents, and all of our children. I know it seems I always talk about Lauren & Kara 'cause they're the 2 of our children that Kara's cancer treatment has involved; but I wanted to make mention that Erica & Brent are really special kids, too! (I'm really glad for everyone that has come through for us & been there to support, love, and care for them too!) THANK YOU! There was one thing I wanted to mention that Brent said Friday. Friday evening, it was raining, and there was tornado, flash flood watch / warnings in our area and/or the surrounding areas and Brent asked me if I had a Bible. I told him yes. He asked if it was here, with us. I said yes. He told me that I could stand on it like that girl did. She stood on the Bible, and believed hard enough and the tornado went right by/around her. When he first mentioned this to me, I thought that maybe he was talking about the girl who did this during the Sept. 11, 2001 attacks. Some of you may remember the story. I told him he could get my Bible if he wanted it, and he said, "No, I meant you." I know Brent likes to pester at times, and he keeps us laughing, but he sure does have a soft heart, too! Then Erica made a poster and she put all of our names on it, and put some sayings on it. One of them said, "My family is the best!!!" Needless to say, it was really good for all of us to be with our older 2 children this weekend! :)

Friday night was the last time I remember Kara actually "complaining" about her legs hurting. She's had some really good cackles. You know, some deep, genuine laughs over the past couple of days. Sunday, she & Lauren were REALLY loud in the car, and Tony made mention that if Lauren wasn't with us, Kara would be sitting back there, ready to fall asleep. He's mentioned how good it is for Kara to have Lauren. She even rode her scooter some outside on Saturday. It was beautiful today, and she wanted to walk over to the Hospital for her appointments, so that's what we did, only she started to jog/run at one point! She got a little tired, but she didn't ask us to hold her! She had p.t. today, and Lauren took part in it, too. They really enjoyed it. Tony & I are thankful that she actually was enjoying it & taking part in it. This was good to see for a change!

We made it through the weekend, and found out Kara's red blood cells rose on their own, as did her platelets! But, her ANC dropped down to only 700. So, they gave her a quick boost of G-CSF to raise her immunity level. Her steroids were dropped down to 1 x/day, and we are leaving her on TPN. The N.P. talked about dropping her calories in the TPN even more, maybe causing her to want to eat more. I'm glad to say that I've noticed an improvement yesterday! She doesn't have to be seen in clinic until Thursday! If she's still doing good then, they will completely take her off of her steroids, and they also talked like they'd discontinue some of her other med's that she was discharged out with. On Thursday, we also have an appt. with the Nutritionist, have her labs checked, and she'll have P. Therapy again. By the end of this week, I look to be back in her solid tumor clinic's care. Please pray for her upcoming scan - pray for her cancer to! be com pletely gone! I don't have a date yet for this, I just know that she will have it before radiation.

Thank you all for checking in, and keeping our whole family in your prayers. Prayer works! Keep believing, trusting, hoping, and asking! Don't forget Brooklyn, Danny, and all the other people that are battling sicknesses/diseases. Please remember Tony's family in Connersville, today. Papaw Hezie's funeral is at 11 a.m. He was such a special Papaw, Father, Christian, and such an awesome example of how we should live our lives. We will miss everything about him!

God bless ....
Megan :)


03 May 2008, 6:27pm EST
I will do another update in more detail when I have more time, but just wanted to check in to let everyone know that Kara is doing good. We are really glad to be able to spend time with all 4 of our kids together.

The main reason for this update is to give the details of Papaw Hezie's visitation and funeral. We were concerned that the paper may come too late for people to make plans for his visitation. Hezekiah Estes (Mamaw Vonda's Dad & Tony's Papaw) passed away Friday evening. He was a special person & he will be missed by so many. That I'm sure of. Tony said he never knew a stranger. He always made you feel welcome and loved. We know he's in Paradise now. He's made it home, and no longer suffering. Please be in prayer for Mamaw Estes & all of their children & grandchildren & great-grandchildren... Thank you!

    Visitation: Monday, May 5th 4-8 p.m.
    Urban Winkler Funeral Home
    Connersville, IN

    Funeral: Tuesday, May 6th 11 a.m.
    Urban Winkler Funeral Home
    Connersville, IN

    Burial will follow at Dale Cemetary, Connersville, IN.

Megan


01 May 2008, 6:25pm EST
+24 Days Post Transplant

Well, we are into 2 days now, without a platelet transfusion! Praise The Lord! (And here we thought she'd have to have one each day this week!) Isn't God good?
This is encouraging about her engrafting. Her platelets and her hemoglobin were lower than yesterday, but above transfusion level. Her ANC was still good at 1500. She will have a CBC again tomorrow. They will see if she needs transfused tomorrow, or if her counts will be okay enough to wait until Sunday for labwork. They would like to give Kara the weekend without coming in for bloodwork. It all depends on what her counts show tomorrow.

They have lowered her steroids again today. If all goes well, by the end of next week, she should be weaned off of her steroids and transferred back over to her regular clinic. The nutritionist checked her calorie intake for yesterday. The total intake was about 500 calories, which isn't much, but it is something. They decreased her TPN calories by half, but the volume amount that's infused is the same, and the total time of the infusion is still over 14 hours.

She has been complaining about her legs "cramping", and being tired. Yesterday, she did walk more than she has been used to. Hopefully, with more exercise they will feel better. She will have P. Therapy again tomorrow.

We are planning on Mamaw & Papaw Lee coming to visit and bringing Erica, Brent, & Lauren tomorrow to stay the weekend. We picked up some party stuff today, and are getting things ready for them! We don't know if we'll be out of the hospital tomorrow or not by the time they arrive, but Erica's already mentioned going to Mud Island to have a picnic. Easter weekend was the last visit we had with Erica & Brent, and it's been almost 2 weeks since we've seen Lauren. We're overdue on this one! Kara told me today, "Tomorrow is Day "0", and they'll be here." I know this will do all of us good! Well, I hope you all have a great weekend. (I'm not sure if I will get an update in before Sunday.)

God Bless,
Megan :)

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